Run For the Rose 5k Road Race and Walk
Sunday, October 15, 2017
Join us on Sunday October 15th at 9:00am to kick off the inaugural Run for the Rose 5k! This event is to benefit Boston Childrens Hospital Pain Clinic. The race directors daughter Sadie Rose has benefitted from treatment here. The course begins and ends at the Tewksbury Memorial High School, 320 Pleasant St. Entry fees are $25.00 (plus fees) in advance and $30.00 on race day(race day registration will be at 7:30 AM). For more information, please email firstname.lastname@example.org
Our daughter's story:
Sadie Rose suffers from Eosinophilic Esophagitis, Eosinophilic Colitis, and Acute Cutaneous Nerve Entrapments. Only after a procedure where Sadie was placed under anesthesia that her body was still responding to pain that a doctor from Children’s Hospital directed us to the Pain Clinic at Boston Children’s Hospital. At this time we were devastated that not only do we not know why she is suffering from pain but the procedure has caused a hematoma in her colon and tears in her esophagus. This causes yet another stay in the hospital.
Sadie Rose missed almost all of 6th grade and missed quite a bit of the 8th grade due to her condition. We have had months were we couldn’t touch her. No hugs, no caressing her, she could not laugh, cough or sneeze as the nerve pain was so great. Sadie explained it as being “paralyzed with pain”. These simple normal everyday things would turn into tears as the movement disrupted the nerves and put her back in to severe pain. Finding the Pain Clinic was a true blessing. They started with nerve blocks, then surgery to cut the nerves in her abdomen. At the time Sadie was only the 7th person to receive this type of surgery and yes it worked! However cutting all the nerves is not an option. As the nerve pain moved to her head leaving her with pain, deafness in her left ear and numbness to the left side of her face. The nerve pain didn’t stop there it went to her legs and returned to her abdomen. Sadie was put on the top of the list for Lidocaine Infusion treatments. This would be new treatment offered at Boston Children’s Hospital and the doctors had been pushing for this treatment at the hospital for the last five years. Sadie had been on the waiting list for two years and the wait list was very long due to many children waiting in pain for this treatment.
Sadie’s Doctors at the Pain Clinic were relentless were able to get this procedure approved. Sadie has had 6 infusions in the last year and the results were almost immediate. For the first time in many years her pain level dropped below a 5. We are so thankful!
The Pain Clinic is so underfunded that it has been allotted time for only two patients per week to receive this treatment. The goal is for a patient to receive several treatments in a row to help eliminate the pain before it builds back up. I set out to help them in any way possible. I have set a lifetime goal to raise one million dollars for Boston Children's Hospital Pain Clinic.
100% of the funds raised will go directly to the Boston Children’s Hospital Pain Clinic
Please share our message with friends and family.
Thank you from the bottom of our hearts,
Michael, Shannon, Hanna and Sadie Rose
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